HealthUnlocked Reviews 

249
TrustScore 4.5 out of 5

4.3

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Rated 5 out of 5 stars

After being a fairly active forum member for c 3 yrs I can say that 'Health Unlocked' is a vibrant, inclusive and incredibly kind, supportive community. It is like day and night in compariso... See more

Rated 1 out of 5 stars

No reputable company spams anyone these days. That's all I need to know. They have obviously bought my email address and no matter what I do - mark them as junk, unsubscribe, report, block - I still g... See more

Company replied

Rated 5 out of 5 stars

Seems to be well organised & ‘policed’ by ROS.Although I post very Infrequently I normally read new posts everyday. I found the ROS helpline very useful as is their website & information to download.... See more

Rated 5 out of 5 stars

Very informative site; learning the real truth from real, relevant patients' experiences and open research. Their philanthropic attitude is much appreciated, helping so many others on this forum wit... See more

Company details

  1. Electronics & Technology

Written by the company

Imagine a world where you can tap into the health experiences of millions of people – and translate these into an action plan with the support of peers and patient organisations. Our social network is made up of over 1.5 million members and 500 public communities, covering more than 250 conditions. Providing information, support and tools that have been shown to improve health outcomes. Over 300 patient organisations support these communities. The peer support members find in these communities is also complemented with expert-written information on  eLearning programs.


Contact info

4.3

Excellent

TrustScore 4.5 out of 5

249 reviews

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No recent history of asking for reviews

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4.3

All reviews

(249)

16 reviews in the last 12 months

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Companies on Trustpilot aren't allowed to offer incentives or pay to hide reviews. Reviews are the opinions of individual users and not of Trustpilot. Read more

Rated 5 out of 5 stars

I developed PMR

I developed PMR, 8 years ago and although my surgery was very good in diagnosing it, they were obviously unable to give very little information on the day to day management of it. The support, education and up to date information from the PMRGCA charity has been invaluable.

August 25, 2023
Unprompted review
Rated 5 out of 5 stars

Very informative site; really valued!

Very informative site; learning the real truth from real, relevant patients' experiences and open research. Their philanthropic attitude is much appreciated, helping so many others on this forum with their time and knowledge!
Does make me angry, though, that GP's are forced to? work to ICB/NHS guidelines which, in some conditions, doesn't follow NICE/BNF guidelines.
Thank goodness this site exists! Many patients would be lost or have worsened conditions without it!

August 25, 2023
Unprompted review
Rated 5 out of 5 stars

A Safe and peaceful place !

This place is safe and clean, one can express self feelings and experiences with no judgement or critic from anyone.
Moderators are discreet and only act whenever needed, the community being adult enouh to self regulate.

August 25, 2023
Unprompted review
Rated 5 out of 5 stars

I have been on this site for a long…

I have been on this site for a long time and it seems to run smoothly most of the time. Its a good place to seek advice from fellow sufferers and have a chat. As the saying goes a problem shared is a problem halved and it covers many health matters.

August 25, 2023
Unprompted review
Rated 5 out of 5 stars

Brilliant informative site with amazing…

Brilliant informative site for thyroid issues with amazing input from a huge variety of people willing to share their lived experiences and gained knowledge.
Ability to openly discuss issues, supplements, remedies and realize you are not alone... fantastic sharing experience whether you want to get really technical or just have a good old rant, there will be someone there for you

August 24, 2023
Unprompted review
Rated 5 out of 5 stars

HealthUnlocked has the best prostate…

The MaleCare-managed "Advanced Prostate Cancer" forum, deployed on the USA-based HealthUnlocked platform, is the best prostate cancer forum in English that I have found. (Health Unlocked supports forums for other cancers as well.) The MaleCare prostate cancer forum is very well moderated. There are ads, but they are not distractingly in your face all the time. Most importantly, the volume of intelligent comment is high. I visit probably multiple times a week. (Also there doesn't seem to be a lot of so-annoying "feel good" hype.) I looked at a few other forums, including one that you would think given my circumstances I would want to participate in. But the volume isn't there and/or the forum is awkward to use, or the forum is dominated by too-much low-information empathy. I'm here for the knowledge and the experience, not the empathy of a stranger (although In fairness there are some powerfully moving interactions on the forum). MaleCare's Health Unlocked is good content from real people engaged in serious, informed and thoughtful dialogue, and in a decent setting. Efficiency, focused content and ease of use are important to me - because "time is short"🙂. Bravo MaleCare and HU.

August 18, 2023
Unprompted review
Rated 2 out of 5 stars

Some Communities are very poorly Admined …

Some Communities are very poorly Admined
No Communication takes place between members and Admins they do not reply which makes you feel you do not matter
Very hard to contact Health Unlocked as well and rare they reply to
Members mostly are supportive it is Admins and Health Unlocked itself that let members down and for this reason would not recommend

August 24, 2023
Unprompted review
HealthUnlocked logo

Reply from HealthUnlocked

Hello there Mr. Roberts,

We are sorry that you have not received a response from us regarding your experience with how your communities are being Admined. Please can you reach out to us at support@healthunlocked.com so that we can investigate this further for you?

All the best,
The HealthUnlocked Team

Rated 5 out of 5 stars

A very helpful site...This site is a very helpful and…

This site is a very helpful and informative site, giving experience of others suffering Thyroid conditions. It helps get important information to people who need it and that is not given by NHS. The only thing I would like added is the date on each post, to make the information given more relevant to the post.

August 24, 2023
Unprompted review
Rated 1 out of 5 stars

Seems like the worst of Social Media applied to health

Seems like the worst of Social Media but about health. Constant prompts and surveys asking for your health information so it can be harvested for private health companies to profit from. Poor advice on the forums from people who live in different countries, where different drugs and treatments may be provided to what is approved here.
Like all Social Media, if it's free, ask yourself if you are the product being sold.

August 21, 2023
Unprompted review
HealthUnlocked logo

Reply from HealthUnlocked

Hi Chris,

Thank you for your feedback on the site. We are sorry that you are feeling overwhelmed by our health campaigns across the platform. Maintaining HealthUnlocked as a sustainable platform, free of charge to all our members and patient advocacy groups, has been our highest priority. With this in mind, we have been providing our members with greater opportunities to be part of a wider scientific network and to engage with significant healthcare research, with the aim of having people’s voices heard in the health areas that matter most to them.

We can understand and appreciate that not all members want to help in advancing scientific research, this is why we give you the option whether or not to share your de-identified health experiences with HealthUnlocked and its research partners. HealthUnlocked never shares your identifiable information without your explicit consent. Read more on this via our Privacy Policy: https://support.healthunlocked.com/article/148-privacy

You can manage your data sharing via your settings.

We are proud that HealthUnlocked has grown to a global level, and with this comes differing health experiences from across the world. Please keep in mind that we are not a platform for advice, although the experience of some might come across that way. If you come across prescriptive posts, please report them to the moderation team to review.

If you would like more information, or help updating your settings, please do contact us on support@healthunlocked.com and we will be more than happy to help you further with this.

Rated 2 out of 5 stars

HU used to be a "Go To" site, but no more.

Well, HU used to be a place, where a variety of users input, thoughts and information were freely expressed and accepted. It allowed a very wide view of cancer care and allow searching within SOC and cutting edge therapies along with Complimentary Alternative Medicine and holistic paths. It was packed with useful information.

But no more... It appears there are egos that are in control and disallow any content they feel isn't acceptable. Heaven forbid you offer an contradictory experience or thoughts to posts by those in control, your posts are deleted, you get shut down, banned. And not because you did anything other than offer a view from a different direction, not even anecdotal, but personal experience is suggested in the site's own rules, but will be shouted down as non contributory, not fact based, science supported.

It's sad and a sorry state of affairs. I've been on the internet since it's early days, and involved in forums, since bulletin board days and 1200baud modems. Never, ever have I experienced the censorship and ridiculous administration activities I've seen at HU. Also troubling is the disappearance of entire threads with a host of information posted by users, because it's removed by admin that believe it to be objectionable. Again, problematic because some of that information is useful to other users.

So just beware, that there is aggressive adminstration with wanton enforcement contrary to the site's own rules! Doesn't matter, they control access, content and information. Period! So use at your own tolerances for being controlled and the information being pushed at, you being controlled as well. It's all good, as long as you're aware what's occuring there at HU.

June 12, 2023
Unprompted review
HealthUnlocked logo

Reply from HealthUnlocked

Hi St.Nick,

I’m sorry to hear about your recent experience on HealthUnlocked. We aim to create a supportive community where all voices are heard. Your feedback about censorship and administration is important to us, and if you'd like to discuss this further, please reach out directly. We value your input and hope to improve your experience with us.

Kind Regards,

The HealthUnlocked Team

Rated 1 out of 5 stars

Health Locked

I don’t trust this site. Be careful who you are sharing your medical info with.I would recommend you do your own research and make your own informed decision before trusting any organizations with their controlled information.
In my experience any post not towing the ‘party line’ gets shut down or removed by their ‘admin police’ Word of warning never ever speak negatively of ‘The Vac cine’ you will be immediately sent to a virtual court then jail . Very suspicious. Again do your own research … if you follow the money it soon becomes pretty clear whose benefit this business is for … IMO.

June 12, 2023
Unprompted review
HealthUnlocked logo

Reply from HealthUnlocked

Hello WDSTSI,

Thank you for taking the time to review HealthUnlocked. All feedback given is extremely helpful to us.

We are really sorry that you have not had a positive experience with the site, especially in terms of trust. The safety and security of our members is at the heart of everything we do, and although moderation can seem unnecessarily strict at times, the current protocols and community guidelines, set in place by our partners, are there to ensure that all our members feel safe within a trusting environment.

At HealthUnlocked, we have a strong stance against health misinformation and are committed to moderating content in line with science-backed education.

If you feel like the moderation of your community is exceeding the necessary precautions, and having a negative impact, please reach out to us directly at support@healthunlocked.com and we will start an investigation into your situation.

Thank you in advance for you cooperation,
The HealthUnlocked Team

Rated 5 out of 5 stars

A response to the person who has been bullied

I have no idea what happened but please let it go and move on. I have never seen bullying and if I did I would report it. Some apologies never come. This is unhealthy for you. Please take care of yourself and do whatever you need to do to get better.

April 1, 2023
Unprompted review
Rated 5 out of 5 stars

HU is a great platform!

HU is a great platform, filled with people who look out for each other. It has more of a family feel to it than anything else. I really like what I've seen lately, and that is HU and the moderators pulling together to keep its communities safe.
A big thank you to HU and the moderators!

April 2, 2023
Unprompted review
Rated 3 out of 5 stars

🌙👶 needs to stop!!

🌙👶you need to stop
i am tired of the drama and the false accusations and things you accuse members of never in my time on HU have i ever seen a member use multiple accounts for revenge of very kind and sweet members of this community . the fact that you continue this behavior disgusts me and the whole other members of this kind and thoughtful community . I do not care if you see this its the time for me to not stay silent and be the strong person that i have been and always will be . You have affected so many members of this community including me and the people that i care about and love . i will never be afraid of speaking up for people NEVER AGAIN !!.

March 25, 2023
Unprompted review
HealthUnlocked logo

Reply from HealthUnlocked

Hi Animefan,

Thank you for sharing your concerns. We are sorry to hear about your experience with the community. We strive to maintain a positive and supportive environment for all our members and take all reports seriously. If there is anything you would like to report, please contact us directly so we can address the issue promptly.

All the best,

The HealthUnlocked Team

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